Our youngest daughter Tessa is 2.5 years old, and six months ago she was diagnosed with Rhett Syndrome, a rare neurological disorder that strikes mainly girls. After 6-18 months of “normal” development, it leads to regression of speech and motor skills and loss of purposeful hand use. We are hopeful our Tessa will walk someday, but it is fairly certain she will never speak. The grant from CJ’s Fund will go towards an augmentative communication device so that we can work on other ways for her to let us know what she wants and needs. She loves using it to activate various toys, and to request “more” (usually more iPad)! We are so very grateful.
Without the generosity of CJ’s Fund, we wouldn’t be able to offer this benefit to families as readily. We’re so grateful to you both, to your families & friends & all who donate in your dear little one’s name to make these kind of small miracles happen! Our Team feels strongly that the love you held for CJ just keeps continuing outward in many positive and caring ways. We’re so grateful to you and all of CJ’s loving supporters – they’ve touched so many – across the state…thanks again for thinking of those children who are in need of Early Intervention – CJ’s Fund has made such a difference in so many young lives.
- Pat, Program Director, Pediatric Development Center, Inc., Pittsfield