How CJ's Fund Helps

Charlie's Parents

After a normal pregnancy, we noticed that something was out of the ordinary the moment Charlie was born. He was initially diagnosed with microcephaly, and after many tests he was diagnosed with Joubert Syndrome- a molar tooth brain malformation which affects vision, motor skills and results in low muscle tone.

He’s getting stronger every day and just as crazy as any other toddler, but we could not have done it without our amazing team at EI. We still have our battles to face but we are very optimistic about the journey we are on! Thank you to you and your donors for helping us along the way!

- Charlie's Parents