How CJ's Fund Helps

This year we found children could use the support of specialized chairs with head and neck support. These children are diagnosed with Trisomy 8 and Cerebral Palsy which require more motor supports than most parents can afford. It makes all the difference in the world to children who attend groups during the week, but Anthony uses it the most. Anthony’s trunk is weak; so he needs the additional support of this type of chair. Thank you again so much for bringing your CJ into all of our lives. He has made such a positive impact on EI and for so many families in need.

- Pat, Program Director
Pediatric Development Center, Pittsfield

This year we purchased a heavy-duty play mat for one child who is working on weight bearing and pulling to stand with his physical therapist, and a trampoline recommended by an Occupational therapist for another child. We also ordered feeding and sensory materials that families can use on an everyday basis. We also purchased therapeutic items to lend to families, such as ankle weights, tumzees for tummy time and balance cushions. For our swim/aquatic therapy program, we were able to purchase puddle jumpers and for our parent infant playgroup we bought a long wall mirror. This donation means so much to the children and families whose early intervention experience and daily lives are enhanced by the therapeutic materials. And the staff members are so appreciative of the additional resources to share with families.

- Margaret, Clinical Director
Thom Anne Sullivan Early Childhood Programs, Lowell

Our family is extremely grateful for the new stroller for our daughter Lucy. This journey is definitely not easy but the generosity of the people we have met is amazing.

- The Couch Family

At six months old Arianna was diagnosed with a disease (SMA type1)that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. With this grant we were able to purchase much needed equipment for my Arianna.

- The Friedman Family

Avery loves being able to play with a toy that is accessible to her. She smiled right away when she tried out the toy and heard the music. I’m sure you are aware how difficult it is to obtain these specialized and expensive toys. Your donation to help these deserving children makes a big difference in their lives.

- Katherine, Avery’s Case Manager, Brockton, MA

Our son, Robbie has neurological disorders that make it impossible for him to move parts of his mouth, tongue and throat and prevents him from forming intelligible words. It causes incredible frustration, as he is not able to express his thoughts, wants, needs etc. After a long battle we received a helpful medical device that allowed him to push buttons associated with words. Initially we were told it was fully covered by our insurance, but after completing the required 2 month trial, and seeing much hope as Robbie was starting to feel heard, we got a very large bill. After many phone calls and inquires to resolve the unexpected bill, I realized that our only options were to explore other devices (which can take up to 6 months), or pay the bill. Financially, we were not in position to pay for the device. I explained the situation to our EI coordinator and SLP, Kristin. I felt totally discouraged and sad that we would have to consider changing his device and explained our situation to Kristin. I asked if EI ever helps families out with this kind of a need. Within an hour of talking to her she called with the most incredible news. There was “CJ’s Fund” and it was going to mean Robbie could keep his device. As tears filled my eyes I felt such appreciation and gratitude.

- The Mackey Family